Monday, May 27, 2019

May 27th - Pectus Surgery Day 3

He did really well today, and they discharged us. I have mixed feelings about that. So does he. His pain has been under control all day. He has been active, and inactive which is exactly what you want.

 But now that we are "home" things are a tad more difficult. "Home" for now is the Ronald McDonald House here in Cincinnati. We will be here for two nights, then we move to a new "home". I think this may be some of the worse. Not worse than the 9 pain, but not as easy as the hospital. At the hospital we had a "normal". The recovery for this is not easy. You can't use your arms in any way to help you lift yourself, position yourself in bed, get out of a chair, go up an down stair or push or pull. Your arms are basically not there. While in the hospital we practiced all this, but on their bed, their chair, their stuff. Now that we moved, the bed is softer and more difficult to move in using the accepted ways. Our normal has been messed up and we have to find a new one. Today has been soooo much better than yesterday, but still has its own challenges to face.
Another issue is fear. He is afraid of the pain he felt yesterday. Who wouldn't be? That means any change in pain and a bit of anxiety sets in. Which makes the pain worse. This goes with leaving the hospital. Its like a security blanket is gone. And he is afraid.


Specifics to pray for - 
That we find a new normal. 
That his pain continues to be in check.
That his ab muscles adjust quickly. 
That every day is better.


As a side note.....I am kind of afraid I am going to OD my kid by accident. No really there are only two we can't have at the same time. And another two are as needed.



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